CTRC Supported Publications
Journal of Communication Psychology
Building a research-commuinty collaborative to improve community care for infants and toddlers and toddlers at-risk for Autism Spectrum Disorders
Brookman-Frazee, L., Stahmer, A.C., Searcy (Lewis), K., Fedar, J.D. and Reed, S. (2012)
Volume 40, Issue 6 pages 715-734, August 2012
This article describes the formation and initial outcomes of a research-community collaborative group that was developed based on community-based participatory research principles. The group includes a transdisciplinary team of practitioners, funding agency representatives, researchers, and families of children with autism spectrum disorders, who partnered to improve community-based care for infants and toddlers at risk for autism through the implementation of evidence-based practices. Data from this group provide support for the feasibility of developing and sustaining a highly synergistic and productive research-community collaborative group who shares common goals to improve community care.
Parent and Multidisciplinary Provider Perspectives on Earliest Intervention for at Risk for Autism Spectrum Disorders
Stahmer, Aubyn C. PhD; Brookman-Frazee, Lauren PhD; Lee, Ember PhD; Searcy, Karyn MA, CCC-SLP; Reed, Sarah MA
Early identification and treatment of Autism Spectrum Disorder (ASD)
in children younger than age 3 years is becoming an increasingly common area of concern and study. Research suggests that systematic, early intervention can significantly improve outcomes and reduce the cost of caring for children with DDASD through the lifespan. Therefore, it is imperative that evidence-based practices (EBPs) for this young age group are translated effectively into community settings. One method of promoting EBPs and developing capacity for implementation is active collaboration between researchers and community
stakeholders. This requires a precise understanding of the perspectives of stakeholders regarding the benefits and barriers of specific practices and early intervention in general. In the current study, we gathered feedback from families and a multidisciplinary group of community providers regarding early intervention values for infants/toddlers at risk for ASD and their families through focus groups. The opinions and values of the community sample were examined using mixed qualitative and quantitative methods to facilitate efforts
to build long-term capacity for implementing efficacious ASD intervention for children younger than 3 years. Results indicated that, the values of community providers and parents were highly similar and were aligned with EBP strategies. Recommendations for translating EBPs for this population into community settings are discussed.
Parent Perceptions of an Adapted Evidence-based Practice for toddlers with Autism in a Community Setting
AC Stahmer, L Brookman-Frazee, SR Rieth, JT Stoner
Although data from parent-implemented Naturalistic Developmental Behavioral Interventions have shown positive effects on decreasing core symptoms of autism, there has been limited examination of the effectiveness of Naturalistic Developmental Behavioral Interventions in community settings. In addition, parent perspectives of their involvement in parent-implemented early intervention programs have not been well studied. Using both qualitative and quantitative data to examine parent perspectives and the perceived feasibility of parent training by community providers, 13 families were followed as they received training in the Naturalistic Developmental Behavioral Intervention, Project ImPACT. Data indicate that parent training by community providers is feasible and well received, and parents find value in participating in intervention and perceive benefit for their children. Recommendations for adaptation of program elements and future research are discussed.